A global patient support organisation for people living and dealing with X-Linked Hypophosphatemia (XLH).In 1996 a college student in Minnesota connected online with a man in England whose wife and children have XLH, and with a man in British Columbia whose son had a spontaneous case. All of them were looking for help on the internet, and from this connection The XLH Network was founded in November, 1996 as an international volunteer group of people affected by or interested in XLH, or X-Linked Hypophosphatemia. Today we're incorporated as a 501(c)(3) tax-exempt charity making all donations tax deductible to the fullest extent allowed by law. We are the first organization in the world specifically dedicated to XLH.Growing daily, The XLH Network is helping thousands of people around the world who are affectede by or interested in XLH and related disorders of phosphate wasting. Our website provides information to people around the world with up-to-date information on diagnosis, treatment and the very latest research. XLH Network membership is growing daily, and members have available to them a variety of tools that help connect patients with each other, and with clinicians and researchers as well.
Headquarters: 911 Central Avenue #161, Albany, New York, United States
Phone Number: +1 800-411-1222
Revenue: $1 - 10M
Legal Name: Xlh Network, Inc
Xlh Network, Inc's Social Media
| NAICS Code: 561599 |Show More
Where are Xlh Network, Inc's Headquarters?
Xlh Network, Inc's Headquarters are in 911 Central Avenue #161,Albany,New York,United States
What is Xlh Network, Inc's phone number?
Xlh Network, Inc's phone number is +1 800-411-1222
What is Xlh Network, Inc's Revenue?
Xlh Network, Inc's revenue is $1 - 10M
What is Xlh Network, Inc's NAICS code?
Xlh Network, Inc's NAICS code is 561599
How many employees are working in Xlh Network, Inc
Xlh Network, Inc has 2 employees
What is Xlh Network, Inc's Industry?
Xlh Network, Inc is in the industry of Non-Profit Organization Management