The Ehlers-Danlos Society

Description

• Who We Are Established in 1985 as the Ehlers-Danlos National Foundation by Nancy Hanna Rogowski (19571995) we are a nonprofit organization serving the global community to affect change and progression in the world of Ehlers-Danlos syndromes. Our Vision We are striving toward a time when all those with Ehlers-Danlos Syndrome have their right for an early diagnosis, good management, respect and recognition for their condition. A time when geography does not determine your quality of life and when you tell some one you have Ehlers-Danlos Syndrome, they do not ask what that is. Our Mission Collaborative Research Bringing together medical professionals from all over the world to work on ground breaking treatment into this condition. Organising medical symposiums every two years to update the diagnostic criteria and management and care guidelines. Bringing together and uniting our community. Providing annual conferences to distribute information and create opportunities to interact. Producing reliable up to date medical literature though our esteemed medical and scientific board Signposting both patients and medical professionals to information, resources, support and education. Uniting support groups and charities from around the world, providing resources and information where needed. Building chapters so that The Ehlers-Danlos Society becomes a recognised brand globally. One person fighting is a start, but many together build an army. Giving HOPE to all those whose lives are effected by Ehlers-Danlos syndrome.
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  Headquarters:7918 Jones Branch Drive Suite 300, Mclean, Virginia, United States

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  Phone Number: +1 202-927-7000

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  Website:

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  Employees:6

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  Revenue:$1 - 10M

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  Legal Name:The Ehlers-Danlos Society

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• |  NAICS Code: 813990  |

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