Tuberous Sclerosis Alliance

Description

• The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC), while improving the lives of those affected. The TS Alliance promotes research to find better treatments and ultimately a cure and offers a wide range of programs and services for those affected by TSC.TSC is a genetic disorder that causes non-malignant tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. TSC is the leading genetic cause of autism and epilepsy, and the aspects of TSC that most strongly impact quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability and autism. In 1974, four mothers formed the organization to provide fellowship, generate awareness, pursue knowledge and offer hope to those who shared the common bond of TSC. 2014 marks the TS Alliances 40th anniversary, and these goals still remain the driving force of the organization.Since our humble beginnings, the TS Alliance has funded more than $17.4 million in support of basic, translational and clinical research. Because of our advocacy for research and promoting young investigators, we funded and cultivated a new generation of senior scientists who today receive generous funding from sources such as the National Institutes of Health and the Department of Defense Congressionally Directed Medical Research Program. Due to the strength of our grassroots volunteers, more than $171 million has been spent on TSC research over the past 12 years from these important sources.Research to find a cure for TSC offers hope for millions of people, not just those affected, because it is truly a linchpin disease. Unraveling the mysteries of TSC may have far-reaching effects on the general understanding of epilepsy, autism, diabetes and even breast and kidney cancer.
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  Headquarters:801 Roeder Road Suite 750, Silver Spring, Maryland, United States

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  Phone Number: +1 301-562-9890

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  Website: https://www.tsalliance.org/

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  Employees:40

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  Revenue:$1 - 10M

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  Legal Name:Tuberous Sclerosis Alliance

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• |  NAICS Code: 541720  |

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