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    Noonan Syndrome Foundation

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    Description

    • The Noonan Syndrome Foundation (NSF) is the leading 501(c)(3) non-profit, charitable Noonan syndrome (NS) organization. Our mission is to Support, Educate, and Advocate for those with Noonan syndrome.Noonan syndrome (NS) is a variably expressed, multisystem disorder with an estimated prevalence of 1 in 1,000 2,500 births. People with NS may experience bleeding issues, congenital heart defects including hypertrophic cardiomyopathy and/or pulmonary valve stenosis, lymphatic abnormalities, small stature/growth issues, feeding and gastrointestinal issues, failure to thrive, hypertelorism, learning disorders, autism, unexplained chronic pain, chiari malformation, hypotonia, ptosis, skeletal malformations, laryngomalacia, tracheomalacia, opthamology issues, orthopaedic issues, oncology issues and much, much more. Because of the variability in presentation and the need for multidisciplinary care, it is essential that the condition be identified and managed comprehensively.
    • location

      Headquarters:1840 West Whittier Boulevard #195, La Habra, California, United States

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    • Noonan Syndrome Foundation phone

      Phone Number: +1 866-875-9828

    • Noonan Syndrome Foundation website

      Website: https://www.teamnoonan.org

    • Noonan Syndrome Foundation employees

      Employees:4

    • Noonan Syndrome Foundation revenue

      Revenue:$1 - 10M

    • Noonan Syndrome Foundation legal name

      Legal Name:Noonan Syndrome Foundation

    • Noonan Syndrome Foundation's Social Media

      Noonan Syndrome Foundation linkedin Noonan Syndrome Foundation facebook Noonan Syndrome Foundation twitter
    • done Is this data correct?

    • |  NAICS Code: 811212  |

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    Frequently Asked Questions regarding Noonan Syndrome Foundation

    • Where are Noonan Syndrome Foundation's Headquarters?

      Noonan Syndrome Foundation's Headquarters are in 1840 West Whittier Boulevard #195,La Habra,California,United States

    • What is Noonan Syndrome Foundation's phone number?

      Noonan Syndrome Foundation's phone number is +1 866-875-9828

    • What is Noonan Syndrome Foundation's official website?

      Noonan Syndrome Foundation's official website is https://www.teamnoonan.org

    • What is Noonan Syndrome Foundation's Revenue?

      Noonan Syndrome Foundation's revenue is $1 - 10M

    • What is Noonan Syndrome Foundation's NAICS code?

      Noonan Syndrome Foundation's NAICS code is 811212

    • How many employees are working in Noonan Syndrome Foundation

      Noonan Syndrome Foundation has 4 employees

    • What is Noonan Syndrome Foundation's Industry?

      Noonan Syndrome Foundation is in the industry of Non-Profit Organization Management

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