Global Hydranencephaly Foundation

Description

• MISSION: The Global Hydranencephaly Foundation is a family driven nonprofit organization dedicated to providing families faced with a diagnosis of hydranencephaly, the opportunity to help their child live the quality of life he or she deserves. The family-to-family resource network is the foundation of this mission; an ideally structured, multi-faceted community for the dissemination of invaluable information, sharing of effective care management strategies specific to the unique circumstances a family faced with diagnosis of this rare neurological condition may encounter, and individualized, life-long support. Emphasis is placed on the development of empowered parent advocates, strengthened by availability of comprehensive information, geographically tailored resources, and a confident awareness of the rights children have to quality, compassionate care without discrimination. We embrace the opportunity for continuous growth through the expansion of additional collaborative partnerships with like-minded organizations and reputable community businesses. Through community-based awareness campaigns and the planned infiltration of the medical community, we aim to conquer the misconceptions that exist surrounding this diagnosis and portray a clearer picture of the possibilities that exist for these children; giving multiple reasons to Believe in the Impossible!
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  Headquarters:9333 Mcauliffe Ln Nw , Silverdale, Washington, United States

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  Phone Number: +1 573-280-2412

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  Website: https://www.hydranencephalyfoundation.org

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  Employees:5

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  Revenue:$1 - 10M

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  Legal Name:Global Hydranencephaly Foundation

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• |  NAICS Code: 312230  |

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