Angioma Alliance

Description

• Angioma Alliance is a patient advocacy organization whose mission is to inform, support, and empower individuals affected by cavernous angioma and drive research for treatments and a cure. Cavernous angiomas, also known as cavernous malformations or cavernoma, are brain and spinal blood vessels lesions that can cause strokes and seizures when they hemorrhage. They can be inherited and are a leading cause of stroke in children and young adults.Angioma Alliance connects patients and advances research. Our unique assets are a DNA/Tissue Bank, a clinic at the University of Chicago, an International Patient Registry, and an annual Scientific Meeting attended by every major cavernous angioma research laboratory in the world. We support genetic testing and the development of a network of clinics throughout North America. Patients and their families offer mutual support through a one-on-one peer support program, online discussion groups, and family conferences. They receive accurate information about the illness on our website and in our literature.Angioma Alliance has spawned sister organizations in the United Kingdom, Canada, Italy, Brazil, and Australia.
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  Headquarters:520 West 21st Street Suite G2, Norfolk, Virginia, United States

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  Phone Number: +1 610-872-7608

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  Website: https://www.angioma.org

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  Employees:10

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  Revenue:$1 - 10M

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  Legal Name:Angioma Alliance

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• |  NAICS Code: 541611  |

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